tag:blogger.com,1999:blog-11856564.post3630100634889723465..comments2023-09-18T10:25:26.878-05:00Comments on A Shot in the Dark: "Don't Be Afraid"Sandra Millerhttp://www.blogger.com/profile/16664436447708465809noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-11856564.post-83854282244780434382008-04-23T10:21:00.000-05:002008-04-23T10:21:00.000-05:00I just found your blog while looking up consumer r...I just found your blog while looking up consumer report info on insulin pumps. I'll be 32 yrs old next month, and I have had type I diabetes since age 4. I was put on a pump in 1980 (*at that time, they were the size of a VCR tape). I was in great control until puberty. But even with changes in boluses and basal rates, I was able to make it through. At 25, I had NO eye damage, NO kidney Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-28133455886229571032008-03-15T17:41:00.000-05:002008-03-15T17:41:00.000-05:00Sandra - I wanted to say something that would be u...Sandra - I wanted to say something that would be uplifting & encouraging to you. But all I can think to say is that I am complication-free after 37 years with this disease. And the care Joseph gets is so much better than I what I received. You're doing great with his care. He will be fine (even if the teen years are troublesome - mine were, too.) You are doing a great job & he is very fortunate Donnahttps://www.blogger.com/profile/03072030400404976772noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-34306620922149583152008-03-14T07:59:00.000-05:002008-03-14T07:59:00.000-05:00Sandra - You can do this and so can your son!Be gr...Sandra - <BR/>You can do this and so can your son!<BR/>Be grateful that you and your endo have a plan.<BR/><BR/>Years ago, (I'm talking like 22,) endos would just tell kids to watch what they ate, and didn't event take hormones into consideration.<BR/><BR/>I know it's scary, but you guys are doing a great job and he's going to be fine. So r u!<BR/>k2k2https://www.blogger.com/profile/04167099133092135850noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-60913125300842860512008-03-14T07:54:00.000-05:002008-03-14T07:54:00.000-05:00When my daughter was first diagnosed, I used to th...When my daughter was first diagnosed, I used to think the A1c was the parental report card. If the number was high, you gat the stink eye from the endo team. And if it was good, I drove home on top of the world. More insulin does not mean he's getting worse. I know you know that but sometimes you need to hear it from other parents who know EXACTLY what you are feeling. My husband had the hardest Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-34009573529623286772008-03-13T18:42:00.000-05:002008-03-13T18:42:00.000-05:00Nicole-Made me cry to write it.As always, your sup...Nicole-<BR/><BR/>Made me cry to write it.<BR/><BR/>As always, your support means a lot.<BR/><BR/>Jillian-<BR/><BR/>I agree with you about the day to day of diabetes being easier.<BR/><BR/>While most days I'm pretty good at focusing on (and appreciating) my son's complication-free present, days like this one leave me wide open for those what ifs.<BR/><BR/>Anon-<BR/><BR/>Thank you so much for Sandra Millerhttps://www.blogger.com/profile/16664436447708465809noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-20469403401019179072008-03-13T10:43:00.000-05:002008-03-13T10:43:00.000-05:00Sandra, Thank you for writing about this. While w...Sandra, Thank you for writing about this. While we are not quite to the puberty stage yet, I so connected with your feeling of what those numbers are meaning inside that sweet boy. I think that has been the hardest thing to deal with, feeling that premature guilt for complications that have yet to happen. The feeling of such responsibility and accountability in each and every number. <BR/>I Vivianhttps://www.blogger.com/profile/00276484548667354919noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-82948161331014827812008-03-13T06:57:00.000-05:002008-03-13T06:57:00.000-05:00Ahh puberty! Don't you love it! We are still in t...Ahh puberty! Don't you love it! We are still in the middle of it, but not quite as strong and I remember being so fed up with the highs that I set a temporary basal of 150%. Of course, I was checking every couple of hours through the night, but never had a problem. I was totally amazed and shocked at how much insulin a pubescent boy could use.<BR/><BR/>Hang in there,you are doing a great job..Tonyiahttps://www.blogger.com/profile/05060641295627318694noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-45759470235424264782008-03-12T12:59:00.000-05:002008-03-12T12:59:00.000-05:00My a1c’s as a teen (I was diagnosed at 13) were an...My a1c’s as a teen (I was diagnosed at 13) were anywhere from 8.5 to 13.7 (at my highest.) That won’t necessarily make you feel any better, but this is a difficult time for any diabetic. Any time you get bigger or smaller, insulin dosages change and you have highs or lows. I’m still fairly healthy after almost 17 years of diabetes, and I must say that most of my health problems are not a Sarahhttps://www.blogger.com/profile/02841767505240383644noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-4984908421518739802008-03-12T12:55:00.000-05:002008-03-12T12:55:00.000-05:00I would never classify "it's puberty" as an excuse...I would never classify "it's puberty" as an excuse. It's not an excuse, it's a reason. Hormones really DO mess up the blood sugars. We've been battling them here for a couple of years. For a good year and a half, I was changing Olivia's basal rates every couple of weeks. <BR/><BR/>8.5% is not that high for a kid Joseph's age. I think you'd probably have to completely eliminate carbs from Major Bedheadhttps://www.blogger.com/profile/17669161302510096751noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-12155906733339302562008-03-12T10:56:00.000-05:002008-03-12T10:56:00.000-05:00My daughter is a mature 11 yr old and I wonder how...My daughter is a mature 11 yr old and I wonder how long the endo will use the "it's puberty" excuse. Knowing the hormones are messing with the hormone insulin does not bring comfort.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-4662919329386442542008-03-12T10:31:00.000-05:002008-03-12T10:31:00.000-05:00By the time I was Joseph's age I was taking care o...By the time I was Joseph's age I was taking care of my diabetes on my own with no help at all from my family. Let me tell you, going though puberty, and taking care of your own health alone is a tall order. I know many people that are able to keep good control throughout growing up but I was not one of them. My Endo would have been thrilled with an A1c of 8.5. I have had A1c's as high as 12 and Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-79120281974677128412008-03-12T10:07:00.000-05:002008-03-12T10:07:00.000-05:00I think the future and the what ifs are far worse ...I think the future and the what ifs are far worse than the day to day of diabetes. It's such a terrible disease in that way. <BR/>This one result does not determine Joseph's future. Puberty is a difficult time for anyone with Type 1, but keep in mind that there are many shining examples through out the OC of complication free diabetics who made it through this time too. Plus you have amazing Jillianhttps://www.blogger.com/profile/17009303866200298151noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-15663487136428551872008-03-12T09:02:00.000-05:002008-03-12T09:02:00.000-05:00This one made me cry Sandra. I know EXACTLY what ...This one made me cry Sandra. I know EXACTLY what you mean. Those numbers make us think about the inner workings and that's scary. <BR/><BR/>But your endo is right - you'll do this. And Joseph will be OK. <BR/><BR/>Sending you good thoughts and lots of love.<BR/><BR/>NicoleNicole Phttps://www.blogger.com/profile/11847231791131970750noreply@blogger.com