tag:blogger.com,1999:blog-11856564.post115651568645725127..comments2023-09-18T10:25:26.878-05:00Comments on A Shot in the Dark: Two Big Jars of Glucose TabsSandra Millerhttp://www.blogger.com/profile/16664436447708465809noreply@blogger.comBlogger25125tag:blogger.com,1999:blog-11856564.post-1157217337557918272006-09-02T12:15:00.000-05:002006-09-02T12:15:00.000-05:00Thank you for sharing your story. I hope Joseph wi...Thank you for sharing your story. I hope Joseph will know the day when he "used to have" diabetes.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1157041741749806822006-08-31T11:29:00.000-05:002006-08-31T11:29:00.000-05:00Wow. I'm a little weepy over here now. Thank you...Wow. I'm a little weepy over here now. <BR/><BR/>Thank you so much for sharing this!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1157033015037244172006-08-31T09:03:00.000-05:002006-08-31T09:03:00.000-05:00Oh Joseph... what a kid you have there. I think I ...Oh Joseph... what a kid you have there. I think I may be the only non diabetic person without a diabetic child that reads your blog. I don't know where I found it, but I started reading back a bit before he went off to camp this time. I've just never commented before. <BR/>Diabetes sucks. <BR/>I have a high health needs child too, imagining him living his life like that is scary. But it's become Estellehttps://www.blogger.com/profile/12133147419963948340noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156902196503633682006-08-29T20:43:00.000-05:002006-08-29T20:43:00.000-05:00Dear Sandra:WOW - Your story made me tear up! I ha...Dear Sandra:<BR/>WOW - Your story made me tear up! I have Sawyer, our son who is 12 years old and was diagnosed 2-15-06. I have LIVED your experience. Thank you for sharing it!! THANK YOU!<BR/>I have been looking for a site like this. I've bookmarked your blog page. Thanks you!! He has just been approved for a pump and we're all thrilled. Blessings to you<BR/>Nichole - Denver, COAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156900043256395032006-08-29T20:07:00.000-05:002006-08-29T20:07:00.000-05:00Sandra,You are so strong for your son, I really ad...Sandra,<BR/><BR/>You are so strong for your son, I really admire you. I cry with my mom about the same things and I am 30. We all feel helpless at one time or another and we all wish for that cure, and I dont know if I would down glucose tablets with soda, but I would eat a chocolate chocolate chip muffin and down it with a nestle chocolate quick hahaha...<BR/>You are the best mom ever!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156898632452477282006-08-29T19:43:00.000-05:002006-08-29T19:43:00.000-05:00I don't know you, of course, but I feel closer to ...I don't know you, of course, but I feel closer to you and your situation to most people with whom I have daily contact.<BR/>What a great son you have.<BR/>I have one too.<BR/>My son is 5 and he told me the other day that wen he grows up he wants to be a scientist so he can get the cure for diabetes.<BR/>Wouldn't that be something.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156794977642471352006-08-28T14:56:00.000-05:002006-08-28T14:56:00.000-05:00Sandra,Man, this sucks!As I've blogged about befor...Sandra,<BR/><BR/>Man, this sucks!<BR/><BR/>As I've blogged about before, I have always thought of my diabetes as a permanent thing. Maybe it's my defense mechanism, not wanting to get my hopes up, I don't know.<BR/><BR/>The cure has always been this mysterious concept to me. I've chosen to think of it as a bonus to my life, not something I need to live a full and content life. <BR/><BR/>It's Kelseyhttps://www.blogger.com/profile/15158609377041501796noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156773221017811682006-08-28T08:53:00.000-05:002006-08-28T08:53:00.000-05:00WOW tear jerker here, I had conversations like thi...WOW tear jerker here, I had conversations like this with my mom and I Threw needles and got mad and ate candy in front of them just to make them feel bad cuz of this damn deseases looking back on it I did not mean to hurt them.. Mom held me too when we both watched on TV that there was going to be a cure in 10 years that would make me 20 oh how I could not wait to be 20 ... I do think they are Jhttps://www.blogger.com/profile/10148339013263096171noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156744775524955292006-08-28T00:59:00.000-05:002006-08-28T00:59:00.000-05:00Sandra,I had to write an entire post in response t...Sandra,<BR/><BR/>I had to write an entire post in response to what you wrote. It was initially inspired by something that another girl wrote, then again by Scott, and it was finally all tied together by your son. <BR/><BR/>I hope it bring some comfort to both you and Joseph.Allisonhttps://www.blogger.com/profile/09845901120926051578noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156619994737342672006-08-26T14:19:00.000-05:002006-08-26T14:19:00.000-05:00Oh, I cried when I read this post because I feel h...Oh, I cried when I read this post because I feel his pain. I was diagnosed when I was 6 (which I think is easier than being diagnosed in the teens)and still have those feelings 25 years later. I am sorry for you both, but over the years I realize that when a new major diabetes "product" is announced, it usually takes at least 10 or more years to actually come to fruition-if at all. My suggestion Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156606198419322752006-08-26T10:29:00.000-05:002006-08-26T10:29:00.000-05:00Wow.It's taken me until now to even attempt to ans...Wow.<BR/><BR/>It's taken me until now to even attempt to answer your comments.<BR/><BR/>Broke down too many times.<BR/><BR/>Kerri-<BR/><BR/>The thought of this never going away is really what frightens me most.<BR/><BR/>Sometimes it paralyzes me.<BR/><BR/>When I look at my son (or imagine the seven-year-old Kerri you describe here), I feel deeply that this is not a fear a child should have to Sandra Millerhttps://www.blogger.com/profile/16664436447708465809noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156561534811967372006-08-25T22:05:00.000-05:002006-08-25T22:05:00.000-05:00Oh my, that post got to me. Riley tells me that w...Oh my, that post got to me. <BR/><BR/>Riley tells me that when he's cured he's going to eat all the sugar he wants. <BR/><BR/>He's sure he's going to be cured. And, because of that, so am I. <BR/>I couldn't stand to live any other way.<BR/><BR/>I hope that Joseph will keep this outlook and not get discouraged if the cure doesn't come as soon as he thinks. And, I hope that cure comes sooner Penny Ratzlaffhttps://www.blogger.com/profile/03368479901015692591noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156560901394342652006-08-25T21:55:00.000-05:002006-08-25T21:55:00.000-05:00Sandra, wow, I wouldn't even know what to say to a...Sandra, wow, I wouldn't even know what to say to a child in Joseph's position. I mean, how do you respond to a child who can't bear the thought of growing up and becomingan adult with Diabetes? I think honesty is important, but I think it's also important to remember that there is always hope... <BR/><BR/>I have to echo what others have said. I truly hate this disease- I feel that it has takenAndreahttps://www.blogger.com/profile/12358965463031619266noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156553909373299692006-08-25T19:58:00.000-05:002006-08-25T19:58:00.000-05:00My heart broke reading this post. A lot of people...My heart broke reading this post. <BR/><BR/>A lot of people who have already commented have said what I want to say. I have to believe there will be a cure one day, but will there be?? Should we get our hopes up? Are we doing it all for nothing? What do we say to our kids? What do I say to my daughter when she's old enough to ask me if there will be a cure? I don't even know what I'll say .Jamiehttps://www.blogger.com/profile/08174978790549584487noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156552163141896832006-08-25T19:29:00.000-05:002006-08-25T19:29:00.000-05:00Yet again, I'm in tears and amazement at what an o...Yet again, I'm in tears and amazement at what an old soul Joseph is. He has a maturity far beyond my almost 30 yrs.<BR/><BR/>I'm crying because I don't think I've ever allowed myself to think about a cure. I didn't believe it 13 yrs ago and I still don't. Maybe because I was dx'd at close to 17. Maybe I had already lost theh blind conviction of childhood. I wish I could find it.floreksahttps://www.blogger.com/profile/11826898233141738110noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156546732259365502006-08-25T17:58:00.000-05:002006-08-25T17:58:00.000-05:00I'm sorry for such a painful day.Going out on a li...I'm sorry for such a painful day.<BR/><BR/>Going out on a limb though, I think his going to the pool that day was far more important than trying to figure out the basals for camp. <BR/><BR/>I am jaded, I don't necessarily think there will be a cure anytime soon. Instead, we try to focus on making life as comfortable as possible with the diabetes today, while we raise money and awareness for a Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156540821379944602006-08-25T16:20:00.000-05:002006-08-25T16:20:00.000-05:00I think Scott brought up a good point. Diabetes i...I think Scott brought up a good point. Diabetes is a relatively young disease as far as advancements go.<BR/><BR/>It takes decades for things to change and changes have been made relatively rapidly in the scheme of things.<BR/><BR/>How long did it take to find the cure for the black plague, polio, etc...hundreds of years.<BR/><BR/>We're a microwave society...we want every done seconds ago (I Shannonhttps://www.blogger.com/profile/11082031887238694358noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156540118175142302006-08-25T16:08:00.000-05:002006-08-25T16:08:00.000-05:00There actually is a cure -- a pancreas transplant....There actually is a cure -- a pancreas transplant. It's just that the _cost_ (_major_ surgery, immunosuppression and all its nasty side effects) is so high.<BR/><BR/>I, for one, do not believe that a cure without immunosuppressants is even on the horizon.<BR/><BR/>In the next 15 or 20 years, we _may_ be able to prevent DM1 from developing; we _may_ even find ways to nip the auto-immune reaction Felix Kaszahttps://www.blogger.com/profile/16632822169351276667noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156535841054335602006-08-25T14:57:00.000-05:002006-08-25T14:57:00.000-05:00Oy. What do I say.These emotions are, I think, no...Oy. What do I say.<BR/><BR/>These emotions are, I think, normal for you both to have. That doesn't make them any easier to deal with.<BR/><BR/>There is a lot happening with diabetes - but I think there is an unfair emphasis on TOOLS for trying to MANAGE things, rather than a cure. <BR/><BR/>However, there are a lot of people working on a cure, and I really do believe that one day someone will Scott K. Johnsonhttps://www.blogger.com/profile/06601851114190791084noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156528080274808282006-08-25T12:48:00.000-05:002006-08-25T12:48:00.000-05:00God damn this disease. How much does it suck for ...God damn this disease. How much does it suck for a kid Joseph's age to have to know that - in spite of being able to do most things as well as, if not better than everyone else - there are some things he CAN'T do if he wants to get the very best control of his disease? <BR/><BR/>And how strong is your child to maintain hope against odds that surely, at his age, he's coming to understand.<BR/><Nicole Phttps://www.blogger.com/profile/11847231791131970750noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156526275496834372006-08-25T12:17:00.000-05:002006-08-25T12:17:00.000-05:00Wow, am I glad that both of my girls are at school...Wow, am I glad that both of my girls are at school right now because I just sat here with tears streaming down my face. Your post and the comments really hit home. <BR/><BR/>I have to believe that there will be a cure in my daughter's life time - she's only 7 for goodness sake. But yet I know that many people, for many, many years have been waiting for that cure. When my daughter was diagnosed Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156525607105631202006-08-25T12:06:00.000-05:002006-08-25T12:06:00.000-05:00I too feel that they seem a lot closer to a real c...I too feel that they seem a lot closer to a real cure now than in the past. So I try to live day to day like there will never be one, and don't set a limit like "in ten years", but maintain the secret hope/conviction that I won't be dealing with keeping my basal rates adjusted in the nursing home. (Having been lucky enough not to deal with it as a child, adolescent, bride or expectant mother).<Valhttps://www.blogger.com/profile/10312006887995801255noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156524690262554392006-08-25T11:51:00.000-05:002006-08-25T11:51:00.000-05:00The most painful part of dealing with my child's d...The most painful part of dealing with my child's diabetes is to physically hear his thoughts on how he feels about his diabetes.<BR/><BR/>The current findings of Dr's Faustman and Nadler only cause me to believe that a cure is possible. It's right at the tips of their fingers.<BR/><BR/>This wasn't so 10+ yrs ago.<BR/><BR/>Times have changed.Shannonhttps://www.blogger.com/profile/11082031887238694358noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156523031901600292006-08-25T11:23:00.000-05:002006-08-25T11:23:00.000-05:00I don't know.I know how you feel, I know how JOsep...I don't know.<BR/><BR/>I know how you feel, I know how JOseph feels--but--I am still angry at the doctors who told me I'd be cured in five years. ANGRY. Like Kerri, I can't think about a cure. It's too hard. <BR/><BR/>I don't know how I would have felt about this at his age. I do know that when I turned 22 and had it for five years, I felt furious and betrayed. How dare they tell me I was going Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1156520921702557612006-08-25T10:48:00.000-05:002006-08-25T10:48:00.000-05:00Bears. Sharks. Airplanes. That sound that ballo...Bears. Sharks. Airplanes. That sound that balloons make when they pop.<BR/><BR/>I list what I’m scared of in my bio. There’s a comical element to being afraid of bears.<BR/><BR/>…<BR/><BR/>But deep, deep in the darkest corners of my heart, my real fears are tucked neatly in the shadows. Reading about plans to down a few bottles of glucose tabs and then chase it with regular soda … something Kerri.https://www.blogger.com/profile/11463843830570716380noreply@blogger.com