tag:blogger.com,1999:blog-11856564.post115403643802009086..comments2023-09-18T10:25:26.878-05:00Comments on A Shot in the Dark: Looking for Trouble?Sandra Millerhttp://www.blogger.com/profile/16664436447708465809noreply@blogger.comBlogger17125tag:blogger.com,1999:blog-11856564.post-1154977479640038812006-08-07T14:04:00.000-05:002006-08-07T14:04:00.000-05:00Shannon-As I mention above, I just can't see any o...Shannon-<BR/><BR/>As I mention above, I just can't see any of us missing the symptoms of diabetes. Any time Evan seems to be drinking more than usual -- even if it's hot as bejeezus outside -- I test her.<BR/><BR/>Also, when I asked Joseph's endo about having Evan screened a year ago, her feeling was that the test would give nothing definitive-- because even a positive result doesn't guarantee Sandra Millerhttps://www.blogger.com/profile/16664436447708465809noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1154970238203114682006-08-07T12:03:00.000-05:002006-08-07T12:03:00.000-05:00We've had Jessica and Jacob screened. Negative re...We've had Jessica and Jacob screened. Negative results thankfully. Brendon's endo suggests doing it every 3 years. <BR/><BR/>Yes it would be heartbreaking to find that they have it, but whether we screen or not, we'd find out one way or the other. I'd rather find out sooner before they develop ketoacidosis or before symptoms get out of hand.Shannonhttps://www.blogger.com/profile/11082031887238694358noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1154931006269832482006-08-07T01:10:00.000-05:002006-08-07T01:10:00.000-05:00Dee-Thanks for sharing your experience with this i...Dee-<BR/><BR/>Thanks for sharing your experience with this issue.<BR/><BR/>You've hit it dead on-- if they could do something to stop it, then there would be no question.<BR/><BR/>But as you say, they can't.<BR/><BR/>At least not yet.<BR/><BR/>And Jessica-<BR/><BR/>Thank you for sharing your thoughts as well. I can't imagine any of us missing the symptoms of diabetes should our non-d children Sandra Millerhttps://www.blogger.com/profile/16664436447708465809noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1154824821293475782006-08-05T19:40:00.000-05:002006-08-05T19:40:00.000-05:00Sandra-I may be weighing in late on this, but this...Sandra-<BR/>I may be weighing in late on this, but this issue has come up again recently in our house because we met a family at a JDRF fundraiser with 2 boys both with Type 1, and their mom was ADAMANT about getting the testing done.<BR/><BR/>We just talked with our endo again about it last week... if there was something that could be done with the information to stave off the diabetes in Thing Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1154289348627106002006-07-30T14:55:00.000-05:002006-07-30T14:55:00.000-05:00Sandra, Just putting in my two cents too. This i...Sandra,<BR/><BR/> Just putting in my two cents too. This is just what I would do. I wouldn't get the test. <BR/><BR/>1st, no matter what results I would get, it would not make me worry any less.<BR/><BR/>2nd, if the results say that Holden tests positive, then I would just worry more, and I already have enough worry in my life.<BR/><BR/>3rd, if I got results saying Holden might develope D, Penny Ratzlaffhttps://www.blogger.com/profile/03368479901015692591noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1154230628242436172006-07-29T22:37:00.000-05:002006-07-29T22:37:00.000-05:00I personally think that knowing whether Evan has p...I personally think that knowing whether Evan has pancreatic antibodies or not would only be a good thing.<BR/><BR/>1. The antibody test itself is just a simple blood draw, not terribly invasive.<BR/><BR/>2. If you don't know whether she has the antibodies, or if you find out she does, your level of worry will be the same either way, would be my guess- both are fear of the unknown. However, if Christinehttps://www.blogger.com/profile/13564731989568599206noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1154221786294160212006-07-29T20:09:00.000-05:002006-07-29T20:09:00.000-05:00After reading all this, I think I'm going to pass,...After reading all this, I think I'm going to pass, too. I don't think I can do any of it.Major Bedheadhttps://www.blogger.com/profile/17669161302510096751noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1154203111753761772006-07-29T14:58:00.000-05:002006-07-29T14:58:00.000-05:00Met-Boy, do I hear ya on the straight jacket.Kelse...Met-<BR/><BR/>Boy, do I hear ya on the straight jacket.<BR/><BR/>Kelsey-<BR/><BR/>Thank you for sharing your very reassuring experience.<BR/><BR/>Rachel-<BR/><BR/>I cannot imagine the challenges your friend and her family must have faced caring for <I>three</I> children with type 1.<BR/><BR/>Ellen-<BR/><BR/>Believe me, I <I>have</I> thought long and hard about everything you describe here.<BR/><Sandra Millerhttps://www.blogger.com/profile/16664436447708465809noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1154195999916543832006-07-29T12:59:00.000-05:002006-07-29T12:59:00.000-05:00I posted this at the CWD Forums:As for sibling tes...I posted this at the CWD Forums:<BR/><BR/>As for sibling testing, it's a very personal decision but one that should come with lots of information and thought before consenting to participate. I believe as parents of children with diabetes, we are accutely aware of the symptoms and would recognize presentation early. Receiving news that a sibling tests negative is joyous but you must know that Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1154174742083350762006-07-29T07:05:00.000-05:002006-07-29T07:05:00.000-05:00Very difficult decision there. It's something tha...Very difficult decision there. It's something that we've discussed about having children - if we have the opportunity to find out early in their lives that they may develop type 1 like their father, do we want to know?<BR/><BR/>I'm sure the worry never goes away. My friend has three sisters with type 1 (she's the only of her father's children who does not). Her younger son recently had one of If not a mother...https://www.blogger.com/profile/16439565019650943028noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1154126110481206322006-07-28T17:35:00.000-05:002006-07-28T17:35:00.000-05:00After I got diabetes, my family went down to UCLA ...After I got diabetes, my family went down to UCLA to participate in a study, which would let us know if my younger brother and sister had a predisposition for diabetes. We pulled out of the study after one day. My parents realized that knowing that Rob and Sarah could "potentially get diabetes... one day" was ridiculous. Why worry for something that may or may not happen? <BR/><BR/>Of all the Kelseyhttps://www.blogger.com/profile/15158609377041501796noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1154108008094421932006-07-28T12:33:00.000-05:002006-07-28T12:33:00.000-05:00HI there - I am in the same boat.My son, Tommy, is...HI there - <BR/>I am in the same boat.<BR/>My son, Tommy, is 5 with d. My older son, John is 7 1/2 and Tom's endo talked to me about the trail net too. I am 38, and I would be tested too. But - I really do not want to take any drugs IF there is a CHANCE that I may develop d.<BR/>I am going to cancel my appointment and wait to see what the research is in a year or 2. Until them, I randon test,Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1154105384668005732006-07-28T11:49:00.000-05:002006-07-28T11:49:00.000-05:00Scott-Thanks for weighing in on this.I really wish...Scott-<BR/><BR/>Thanks for weighing in on this.<BR/><BR/>I really wish the test could tell me that she would never become diabetic, but my impression is that it can't.<BR/><BR/>I do know that others have had their non-d kids screened, and I guess I was wondering if there might be some factor I'm missing.<BR/><BR/>Anon-<BR/><BR/>Thanks for de-lurking and sharing your thoughts. You're so right-- weSandra Millerhttps://www.blogger.com/profile/16664436447708465809noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1154103171103952382006-07-28T11:12:00.000-05:002006-07-28T11:12:00.000-05:00Sandra -The fear. It's horrible. And it extends ...Sandra -<BR/><BR/>The fear. It's horrible. And it extends beyond parents with their children. When my niece and nephews arrived, I spent a good deal of time teary-emotional that someday they might get my "bad genes" and be diagnosed. I also keep a close watch when I'm with them, and through conversations with my brother and sisters in law about their health and pretty much freak out at the Nicole Phttps://www.blogger.com/profile/11847231791131970750noreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1154076707080643672006-07-28T03:51:00.000-05:002006-07-28T03:51:00.000-05:00Sandra - Without wishing to depress you, or anyone...Sandra - <BR/><BR/>Without wishing to depress you, or anyone, won't you <I>always</I> be worried about Evan getting diabetes? Because all parents always worry about their kids, because you already have diabetes in the family you're aware of it...<BR/><BR/>I still often think about my brother getting diabetes. He's an adult, older than me, but I still wonder about how he would cope if it happened Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1154041453137950112006-07-27T18:04:00.000-05:002006-07-27T18:04:00.000-05:00Hi - I'm a lurker with a 10 year old daughter dxd ...Hi - I'm a lurker with a 10 year old daughter dxd with Type 1 almost 3 yrs ago and a 6 yr old non-d son. I am always watching him to see if he drinks more water than usual, goes to the bathroom more, eats more or less than usual.<BR/><BR/>I believe that this is part of the balance that we all do everyday - quietly vigilant. Prepared for the moment but not being controlled by the waiting.<BR/><Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11856564.post-1154038637843585082006-07-27T17:17:00.000-05:002006-07-27T17:17:00.000-05:00Hmmmmm.If it were me in your position, I don't thi...Hmmmmm.<BR/><BR/>If it were me in your position, I don't think I would have her tested. <BR/><BR/>Like you say, it's not going to make you any more aware or sensitive to the symptoms.<BR/><BR/>In that way, I don't see any good that could come of it. The possible benefit of knowing that she'll NEVER develop type 1, versus the mental trauma that you will experience if even the possibility exists?Scott K. Johnsonhttps://www.blogger.com/profile/06601851114190791084noreply@blogger.com